Hey John, be sure that your experience is being very usefull for all of us, is always good to see how a doctor react with some cases.
As for you my friend, i had a very bad time on the waiting too, i had some crisis of panic went several times to the hospital, cause i was just very dissapointed with the wait you know. I'm 6 months post op, it's still not looking good but i'm better now. I know how you feel, when you need some support and the doctor just gives you a slap on the face.
Good luck man.