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andersonja

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Posts posted by andersonja

  1. Originally posted by Big Sexy Hair:

    Hello, I am new here, female and a RN. I am sorry for what has happened to you. As an aside, 3 years ago today I had back surgery that left me with chronic nerve and other pain and a host of disabilities, so I can empathize with how it feels to live in a "different" body.

     

    Depending upon the state in which you live, there is a statute of limitations within which you can attempt to bring a medical malpractice lawsuit. Sometimes it's from the date of the surgery, sometimes from the date you discovered the injury.

     

    My real reason for posting is that I hear desperation in your post. You do not say if you have seen a neurologist or a pain specialist. While I am not familiar with nerve damage to the scalp, I had nerve damage to my spine (no,I could not sue; nerve damage and death are potential "problems" with back surgery, LOL). There are medications that can be used successfully for nerve pain of different origins; I urge you to get yourself evaluated to see if there is a way to alleviate your suffering. Best of luck to you.

     

    Thanks. Should've mentioned, there isn't any pain. It just really messed up the physiology and tissue on the back of the head. Very hard to describe, but it took away all the space and mobility in the fascia tissue between the skull and scalp. Picture using a vacuum food sealer on your head icon_smile.gif There's pulling and constriction of the tissue in all directions. Very disorienting.

  2. Hi, I had a HTP at Bosley Chicago in 2000. It was just a simple transplant of 400 grafts to fill in front hairline. It caused more of my original hair to fall out than actually grew in, but I couldn't care less about that. Its the trauma in the donor area that has ruined my life. I recently wrote this letter to Bosley, which they responded to by recommending a prescription medication for nerve damage that hasn't worked. They can offer no other help.

     

    11/08/07

     

    Dr Bosley,

     

    I had a procedure in your Chicago office in Feb of 2000. I have talked to and seen the Chicago office several times since then. I wanted you to be aware of the situation. Since the day of my procedure after the anesthesia wore off, there has been an extreme sensation of tightness and pulling of my scalp originating from the donor area, affecting my whole head and scalp. The problem hasn't let up or gotten better over time, as your employees told me it would. It's been the same since the procedure, and I'm not sure who to turn to or what to do. A doctor in the Chicago office advised me that there are some nerves cut in the donor area. I don't know what happened or what the hell they did to my head ????? . All I know is my life hasn't been the same, and I am not the same person, since the procedure. I was a pretty ??normal' person the first 27 yrs, and without exaggeration or hesitancy to say so, the last 8 have been a living nightmare.

     

    My theory is they cut too big of an incision in my head for the donor hair. My incision is almost 4 inches in length. ( I had no idea it was going to be that long. I was told it would be 2 inches)

     

    If the size of the incision is the cause of what happened, I would say it makes sense. I also maybe realize that my head/scalp's reaction to the procedure is rare. I just wasn't meant to have the procedure. After almost 8 years of living with it, I still don't know how to accurately describe it in words. All I know is how I feel and the sensation in my head and scalp, or lack thereof. There is a definite feeling of physical trauma and injury to my head/scalp. If you can picture your own head and scalp and picture that your scalp is very loose and malleable. Picture taking your hand and grabbing a handful of your scalp on the back of your head, pulling the scalp extremely tight and creating extreme tension in the rest of your head and scalp. Imagine how your face and scalp would feel. Then imagine having that feeling every minute of your life for 8 years. That's a decent description of what I feel. I feel trapped inside my head and scalp, for lack of better words. This is a very, very, debilitating feeling. There is constant tightness and pulling, my head can never relax. So this causes constant stress and my nerves are about shot. My balance and equilibrium is way off, and I have zero sense of well being anymore.

     

    This makes me extremely self-aware, always thinking about myself 24/7. For someone who used to be the total opposite of this, thinking mostly about others and not myself, this is enough to make anyone crazy ?????  Since the day of the procedure, I stopped developing as a person, and have gone completely in the opposite direction.

    I basically am unable to physically live in this state of being much longer. It's sapped my spirit. I've gotten thru the last 8 yrs on shear will and hope that this will be gone when I wake up some morning.

     

    I'm seeking any help you can offer. Thank you.

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