Jump to content

mcr7777

Regular Member
  • Posts

    91
  • Joined

  • Last visited

Everything posted by mcr7777

  1. Yes it was a biopsy. Dermatologists seem unsure on the diagnosis though - I definitely have folliculitis, see term and MPB - and no further hair loss for 4+ years.
  2. It's hard to tell what I'm looking at in this photo...but looks like you might have scale around the hair? The white bulb attached to the end of hair isn't the bulb or root- it's a keratin sac. The bulb or root doesn't fall out with LPP - or any hair condition that I'm aware of. Did you have a biopsy that indicated LPP?
  3. Hey, sorry for the delay - I've checked my email and it's actually Farmaci Tristiana that I order from in Andorra. They have loads of options - and can compound additional things if you request it. Just make sure you're ordering the right strengths as there are lots of options. I usually use normal shipping. If I'm not home, the Royal Mail holds it - and doesn't always issue a note - so I have to collect it at the local sorting office. Royal Mail have been able to track the shipping number issued by the Spanish Postal service which the pharmacy uses.
  4. I've been actively fighting scalp inflammation for a few years now - you can DM me if you have questions.
  5. You should You should find a specialist hair dermatologist -you might have an inflammatory or autoimmune condition e.g. LPP or Areata - or something else. It doesn't appear to be usual MBP based on the pattern and speed.
  6. I'm very sorry about this.. I was diagnosed with LPP after my HT (I think I had it before HT). LPP largely under control now. Dr. should never have offered to do a 2nd procedure until LPP was calmed/treated. Did you have LPP symptoms before HT - and now?
  7. I've used anagencia and now direct from Parati - no issues with either and get my shipment fairly quickly to the UK (within a week or two) via the Spanish post - they will provide tracking number if you ask. I use 0.1% topical but - average 1ml 2-3 times per week or so (sometimes I use 5-6 days/week but smaller dosage per day). I've been using for around 9 months now - less minaturised hair for sure. I used oral fin 1x day for 1.5 years and had mild/moderate sides - nothing similar on topical DUT thankfully.
  8. This is a very interesting study - I wonder if inflammation could be one of the causes. It's known that many with AGA have co-current inflammation to varying degrees and treating the inflammation is not well understood. I was diagnosed with LPP 1 year after HT....not sure it that is what I have or something else.
  9. Agree LPP is not nice - but it's not contagious. It's an autoimmune condition - it's not a fungus/bacterial/viral and not something you can catch from others or at the gym.
  10. I'd suggest seeing a specialist hair dermatologist - if there is inflammation, something like a topical steroid might help (I have an inflmmatory hair condition and the topical steroids help me). Diagnosing these conditions can be a challenge - hence it's best to find an expert hair doctor rather than a generalist.
  11. Interestingly I've read that DUT half life for oral is 5 week....but half life is dose dependent. I've seen it suggested that topical dut doses may be in the days rather than weeks...see post and study below.
  12. So...as far as I'm aware LP is pretty rare in people with LPP and vice versa. LP also tends not to chronic (unlike LPP unfortunately). I'm a member of the FB group for LPP and very few people have LP too - although of course some do on a group of 2000 people. I believe the risk is elevated but it's still pretty rare to have both conditions. I think I read itch is present in 70+% of LPP cases.....eyebrow thinning tends to be more with LPP but also FAPD and occasionally LPP too.
  13. So...as far as I'm aware LP is pretty rare in people with LPP and vice versa. LP also tends not to chronic (unlike LPP unfortunately). I'm a member of the FB group for LPP and very few people have LP too - although of course some do on a group of 2000 people. I believe the risk is elevated but it's still pretty rare to have both conditions. I think I read itch is present in 70+% of LPP cases.....eyebrow thinning tends to be more with LPP but also FAPD and occasionally LPP too.
  14. So...as far as I'm aware LP is pretty rare in people with LPP and vice versa. LP also tends not to chronic (unlike LPP unfortunately). I'm a member of the FB group for LPP and very few people have LP too - although of course some do on a group of 2000 people. I believe the risk is elevated but it's still pretty rare to have both conditions. I think I read itch is present in 70+% of LPP cases.....eyebrow thinning tends to be more with LPP but also FAPD and occasionally LPP too.
  15. This is why many docs recommend biopsies unless the diagnosis is obvious by dermoscope/digital microsocope. Biopsies of LPP show specific types of dense inflmmation e.g. reduction of sebaceous glands, perifollicular lymphotic infiltriate (this is the immune cell attacking hairs)...Some cases of AGA also have lymphotic inflammation - I beleive this can account for poor HT results in some cases. You can read more about it here: https://donovanmedical.com/hair-blog/lpp-biopsy https://donovanmedical.com/qow-posts/ffa-bx
  16. It's only 2 months in and too soon to say - but I'm shedding less miniaturised hair (I have LPP with minaturisation - not sure if it will help for my LPP). Hair derms I've seen for past years say they only prescribe topicals now - so pretty confident it will help based on anecdotal feedback and studies.
  17. I believe paid around 100 Euros for a 3 month supply of topical dut from Fue Clinic including delivery to the UK. No issues with delivery. Still more than oral but less than quoted above. Side effects from oral dut (minimal) are WAY less than I had on FIN after 2 months of using between 1 and 2 ml per week.
  18. Which makes things more confusing is that MBP also causes fibrosis in late stages - and some biopsies of MPB show inflammation. I'm still not sure what the difference is between MBP with inflammation and FAPD (a type of LPP that is like a mix of MBP and LPP), it may be there is no difference but it's so hard to get a diagnosis of LPP...it probably goes way underdiagnosed as most people don't want to go through a biopsy. And biopsies are not 100% defintiive in any case. See below about AGA with inflammation. I do wonder if this is what accounts for many of the poor HT results https://donovanmedical.com/hair-blog/aga-inflammation Just having a bit of itching is probably no cause for alarm but if you have it badly especailly along with other symptoms... you might want to look into it.
  19. My HT has actually held up better than expected - it's been 3 years since I had it (1100 grafts). I've tried different LPP treatments and currently taking topical steroids, topical tacrolimus (compouned) and 10mg of cetirizine daily. Also added in topical dut 1x daily from fue clininc 2 months ago - too soon to say if the latter is working but seems like less sheddding so far. IF you have pimples on the scalp it could be folliculties or scalp acne (can also come with LPP sometimes). I get the same and salycylic acid scalp wash seems to help (you can find them on amazon). Also salyclic acid shampoo like neutrogena t-gel for itchy scalp might help. Good lucky and try not to worry too much - hopefully will be better than before the transplatn.
  20. I may have misunderstood the question.... if the area is scarred ie there are no stem cells left, the hair won't grow back. This can be a long or short process to happen. And sometimes goes through more than 1 hair cycle to scar from LPP ie not every hair shed won't grow back if you have LPP....but it's a progressive condition that tends to spread, especially if left untreated.
  21. They can grow keep growing back but with different texture and not as long as before....it depends how much activity there is....LPP can be slow moving or more agressive.
  22. LPP is poorly understood -and I'm guessing way underdiagnosed in males. Not everyone gets thinning/eyebrows or side burns - but the majority do have itching. There is an overlap LPP/MBP condition called FAPD (Fibrosing alopecia in a pattern distribution). With LPP and hair transplants there are no certainties - for some they take but eventually fall out a few years later for examples. For others they get very poor growth - or some combination of the above. I believe some may do well over time but I struggle to find lots of examples as case studies seem to stop after a few years. There is no 'cure' for autoimmune - this or others - but there are many treatments. It's a difficult condition to treat but many people get in under control after treatment starts. My symptoms have gotten away better but it still flares from time to time. Check out Dr. Donovan's hair pages on LPP - loads of information on it.
  23. Short answer is yes - scalp is much thicker than other parts of the body - and with an open wound there would be a better chance of going systemic- but would depend on how much got in the wound I suppose.
×
×
  • Create New...