Sorry for the long delay in update...
It's now been over 2 years since I've stopped (I'm now 36), and my hair has definitely thinned quite a bit and receded some. If it stopped today, I wouldn't complain, but I've said that every week for a long time and the march continues. In the right lighting (overhead bathroom usually) you can see most of my scalp now, and the difference in my hairline has started to become visible in pictures. I have not taken minoxidil or pursued any other treatments.
I want to go see a doctor about this before it gets worse, from the way my hair has thinned, I'm pretty sure I will be completely bald within a few years. I'm going through this list now (I'm in Los Angeles):
California Hair Transplant Clinics
As far as propecia, I would say I had 4 side effects I didn't realize until I went off the drug (even when I posted to the forum) - keep in mind, it did work amazing for my hair...
1. Depression - 6 months after starting propecia I developed a panic/anxiety disorder. I didn't realize there could be a connection until after I stopped the propecia. I took anti-anxiety drugs (which are the same as anti-depressant drugs) for many years alongside the propecia. After 7-8 years on the propecia I had terrible depression - even as the anxiety was managed by the other medication. Honestly, the only thing that kept me going was knowing what it would do to my family. When I look back on this now (2 years off of propecia) I can barely recognize myself.
2. Sexual - No problems with arousal, just difficult to finish. I won't say there weren't times this was beneficial, but for the most part sex could be very frustrating. Sex is MUCH better now...
3. Testosterone Levels - Not as certain about this, as I never had my levels tested, but the physical differences in me (musculature, body fat) during the times I was on and off propecia are huge, and very noticeable. (I did not have gynocomastia, but higher fat, lower muscle, lower strength) A doctor friend of mine who treats many transgender patients mentioned this drug is commonly used to help them along. I didn't get into dosages or anything, and I didn't undergo any transformation, but there was definitely a difference for me.
4. Alcohol (started year 13) - this is actually what got me to the doctor, keeping in mind I was not aware of #1-3 while on propecia. At first I was just getting unusually bad hangovers, then I would wake up early in the night with my skin burning and my head exploding, then I would have hangovers within an hour of drinking. My GP told me it was the propecia, the dermatologist said it wasn't, but 6 months after quitting I could drink normally again. And I'm talking about a couple drinks, not anything crazy.
Anyway - when I look back at it all, I lost many years to severe depression and anxiety, almost certainly wasn't worth it - but you can't look at life that way, and who knows what propecia was responsible for and what it wasn't.
Hope this is helpful, I'm looking for transplants now, and feel mentally and physically better than I have since 1999.