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Hair Loss Drugs Share your opinions and experiences regarding drugs like Propecia (finasteride), Minoxidil and others.

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Old 06-26-2017, 03:28 PM
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Default worried about long-term unknown side effect of Finasteride

I am currently taking 1mg Finasteride daily to battle against male-pattern hair loss.

I'm so worried about possible negative side effects for long-term use while at the same time I cannot give up my hair.

There are a lot of different sayings and legends about Finasteride. We have no doubt that it's an effective drug, however, at the same time I have doubt about its long-term safety because none of us has used it for long-term (it's a relatively new medicine, only first approved in January 1998, less than 20 years of time)

I have done extensive Google search and find out that there were a lot of tests and research on the effectiveness and safety of Finasteride. However,
in my opinion, the sample size of patients is usually only a few hundred or at most a few thousands, which is not a large sample size, is it?

It's a really difficult decision - whether to stop it, or to continue.

I don't know , and I have no way to know if all those scaring internet legends about the safety of Finasteride is a fact or lie.

What do you think?
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Old 06-28-2017, 06:37 PM
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To be honest, this is one of those decisions that depends largely on who you choose to listen to, which set of "facts" you give more credence to, and ultimately, what your gut tells you to do. As a general rule, I think most people on this forum, myself included, would tell you that while there are always risks involved with any medication, experiencing negative side effects with Finasteride is more the exception than the rule and most people around here recommend it. Add to that that the medication does indeed work, and it really comes down to what you value more: Do you want to maintain your hair for as long as possible with the small risk of experiencing negative side effects? Or do you prefer to forgo the medication (and any potential side effects) and risk losing your hair more rapidly? Which decision helps you sleep better at night?

I know this isn't the most reassuring answer, but it really does come down to what your gut instinct tells you to do. I've taken Finasteride for a couple of years and to my knowledge haven't experienced any negative side effects. In fact, I stopped taking it for a couple of months for no other reason than "I don't like taking medication of any kind" and noticed my hair fall increase quite dramatically... So I'm back on the horse.

And for what it's worth, any concerns with longterm side effects shouldn't be unique to just finasteride. Any medication that we take long term has the potential for this, so just make sure your concerns are based on the valid reports/stories of negative side effects and not the overblown hysteria often found on message boards about one particular drug.

Lastly, talk to a doctor you really trust about this and get their input if you need a push in either direction.
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I am a patient advocate for Dr. Parsa Mohebi in Los Angeles, CA. My views/opinions are my own and don't necessarily reflect the opinions of Dr. Mohebi and his staff.

Check out my hair loss website for photos
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Old 06-29-2017, 02:06 AM
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Quote:
Originally Posted by pkipling View Post
To be honest, this is one of those decisions that depends largely on who you choose to listen to, which set of "facts" you give more credence to, and ultimately, what your gut tells you to do. As a general rule, I think most people on this forum, myself included, would tell you that while there are always risks involved with any medication, experiencing negative side effects with Finasteride is more the exception than the rule and most people around here recommend it. Add to that that the medication does indeed work, and it really comes down to what you value more: Do you want to maintain your hair for as long as possible with the small risk of experiencing negative side effects? Or do you prefer to forgo the medication (and any potential side effects) and risk losing your hair more rapidly? Which decision helps you sleep better at night?

I know this isn't the most reassuring answer, but it really does come down to what your gut instinct tells you to do. I've taken Finasteride for a couple of years and to my knowledge haven't experienced any negative side effects. In fact, I stopped taking it for a couple of months for no other reason than "I don't like taking medication of any kind" and noticed my hair fall increase quite dramatically... So I'm back on the horse.

And for what it's worth, any concerns with longterm side effects shouldn't be unique to just finasteride. Any medication that we take long term has the potential for this, so just make sure your concerns are based on the valid reports/stories of negative side effects and not the overblown hysteria often found on message boards about one particular drug.

Lastly, talk to a doctor you really trust about this and get their input if you need a push in either direction.

Hello. Thanks very much for your advice. You understand me very much !!

You've raised a very good question ---Which decision helps you sleep better at night?
I have asked myself a lot of time but I don't know.

Before I started the medication and noticed my head and my hair loss , I felt so bad. I had a lot of night that I couldn't sleep well.

When I am taking the medicine now, my worries about further loss is relieved and I have positive expectation for hair regrowth.. However, at the same time, every day, a few hours before I should take another pill, I have a lot of struggling. It's like I am increasing my health risk every day by myself.

I always try to persuade myself, hair loss is not a disease, however, taking the drug could increase risks of more serious disease and more importantly, humanity is now able to explore the planet Mars, but our body is still very much not understood. I believe that long -term risks are unknown. It could be no risk, but it could be even more risks than listed in the package of the medicine.
On the gambling table of life, Not taking the medicine does not mean I will not lose the game, but taking the medicine
is like I am placing my bet on the a little bit more risky side.

In fact what it worries me most is the link of the drug with cancer. I'm not so worried about breast cancer because by common sense it's very rare in man. But I'm worried about prostate risks.

Maybe someone believes that I've got a decision and wants to get someone here to support my decision. Honestly speaking, I am really unable to make any decision.
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Old 07-10-2017, 02:10 PM
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I agree with your last comment...i will not take Fin bc of the side effects ive read about AND just the fact that i dont trust big pharm...
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Old 07-14-2017, 05:30 PM
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Quote:
Originally Posted by louis2008 View Post
Honestly speaking, I am really unable to make any decision.
I completely understand where you're coming from, as a lot of what you've described I've felt/thought as well. At a certain point, you really do just need to make a decision for yourself and stick with it - and at the same time, know that you can always change your mind later and make a different one if you choose to. Based solely on the information I'm getting from you here, I think you already know what decision you want to make and which choice makes you feel the most at ease.... Now it's just a matter of you following through with that. Either decision comes with risks, and it's up to you which risks you're more willing to take.
__________________
I am a patient advocate for Dr. Parsa Mohebi in Los Angeles, CA. My views/opinions are my own and don't necessarily reflect the opinions of Dr. Mohebi and his staff.

Check out my hair loss website for photos
FUE surgery by Dr. Mohebi on 7/31/14
2,001 grafts
Ones: 607
Twos: 925
Threes: 413
Fours: 56
1.25 mg Finasteride daily since July 2014
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Old 09-14-2017, 07:53 PM
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I just got some more fin from the pharmacist i was asked if i noticed my mood change and if i was planning to have a family.

I asked why having a family would matter if i'm on fin i was told that 'remember this is a hormonal treatment, it can give a female masculine features'

I was suprised at been told this...
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Old 09-15-2017, 09:59 AM
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Originally Posted by Rashid36 View Post
... it can give a female masculine features'
This is IMO completely nonsense, and another proof that pharmacist and most medical doctors know nothing about FIN :-(

However, FIN is dangerous when your wife is pregnant as she should touch the splitted pills e. g. quarters from 5 mg. This can give birth defects to the baby.

But many members here have become a father on FIN (I think Spex even got twins).
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Old 09-15-2017, 09:44 PM
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I avoided taking propecia for the first 15 years of my hair loss but finally succumbed to it 2.5 years ago after my HT #3 -- It actually helped w regrowth after HT, and also led to generally a fuller appearance. So for me it worked .

Side effects - mainly I had issues with brain fog (lack of coherence) once in a while and to combat that , I cut the dosage to 1mg every other day which seemed to alleviate that issue a bit.

I switched from oral to topical 10 months ago after my HT#4 and my hair is a lot worse for it . Not sure if the switch itself is the cause but to test that theory I am going back on oral propecia now.
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Old 09-16-2017, 08:43 AM
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Quote:
Originally Posted by fortune11 View Post
I avoided taking propecia for the first 15 years of my hair loss but finally succumbed to it 2.5 years ago after my HT #3 -- It actually helped w regrowth after HT, and also led to generally a fuller appearance. So for me it worked .

Side effects - mainly I had issues with brain fog (lack of coherence) once in a while and to combat that , I cut the dosage to 1mg every other day which seemed to alleviate that issue a bit.

I switched from oral to topical 10 months ago after my HT#4 and my hair is a lot worse for it . Not sure if the switch itself is the cause but to test that theory I am going back on oral propecia now.
Could you be more specific on the side effects you experienced on Fin? Especially the "brain fog" ...ive also read about these sides, but no ones really elaborated on the exact nature of the issues....I finally started on Fin about 10weeks ago after seeing a Patient of Dr. Parsleys results on only 1/4 dose per day.....and imeadiatley my hair fall stopped dead in its tracks....then nothing but GROWTH for the past 2 months...i then started on the brand name Propecia (i heard theres a difference) at 1/2 dose per day for the past 2.5 weeks or so, and i have to say my hair has grown back at least 25% of its loss in this short amount of time...iam truly amazed...should have done this 4yrs ago. Ive experienced none of the side effects ive read about and dreaded...lack of libido, ed, sperm volume decrease, brain fog etc....in fact if anything my libdo has increased...and i just have a general more viral feeling (could be placebo) but at this rate i envision most of my hari returning to normal (unless the hammer drops) and i experience bad side effects, or maybe it just stops working? idk...I worried about the sexual sides, and brain fog ive read about but haven't noticed anything at this does Thank God bc this is proving to be a miracle for me so far...It makes me wonder if the underlying reason for my (late in life out of no where) hairloss was hormone related to begin with ??
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Old 09-18-2017, 02:27 AM
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Quote:
Originally Posted by MattyNJ1 View Post
Could you be more specific on the side effects you experienced on Fin? Especially the "brain fog" ...ive also read about these sides, but no ones really elaborated on the exact nature of the issues....I finally started on Fin about 10weeks ago after seeing a Patient of Dr. Parsleys results on only 1/4 dose per day.....and imeadiatley my hair fall stopped dead in its tracks....then nothing but GROWTH for the past 2 months...i then started on the brand name Propecia (i heard theres a difference) at 1/2 dose per day for the past 2.5 weeks or so, and i have to say my hair has grown back at least 25% of its loss in this short amount of time...iam truly amazed...should have done this 4yrs ago. Ive experienced none of the side effects ive read about and dreaded...lack of libido, ed, sperm volume decrease, brain fog etc....in fact if anything my libdo has increased...and i just have a general more viral feeling (could be placebo) but at this rate i envision most of my hari returning to normal (unless the hammer drops) and i experience bad side effects, or maybe it just stops working? idk...I worried about the sexual sides, and brain fog ive read about but haven't noticed anything at this does Thank God bc this is proving to be a miracle for me so far...It makes me wonder if the underlying reason for my (late in life out of no where) hairloss was hormone related to begin with ??
The side effects will eventually creep up on you.
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