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Hair Restoration Discussion Forum - By and For Hair Loss Patients |
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This is for any and all doctors on this site.
1) I have a scalp condition known as "cutis verticis gyrata" which as I understand it is a connective tissue disorder that results in the hardening of the tissue under the scalp which causes it to then furrow. It is quite unsightly when my hair is cut short and looks like my brain is pushing through my skull. 2) I am also losing my hair in the Norwood pattern... I'd say about a 3 right now. I have excellent coverage but the hair on the top of my head is noticeably finer than that on the back and sides, which was notoriously thick and impossible to comb when I was a boy (and still is). I wouldn't mind going completely shaved, indeed that was my intention when I cut my hair for the first time in 5 years. Needless to say, because of the "cutis verticis gyrata", a shaved head is not an option. Believe me, it was quite a shock to discover this condition. Especially for my barber ;-) 3) I am 30 years old and of African descent. 4) I am growing my hair out again to cover the "cutis vertices gyrate" condition but I know this is only temporary because in 5 years I will have lost a lot more hair and then the condition will be impossible to conceal. 5) My research shows that "cutis verticis gyrata" can be surgically repaired by, I believe, a scalp reduction. The problem is that this procedure would leave a scar on the top of my head -- right where I am losing hair and will lose more hair. BOTTOM LINE: I will HAVE to have a hair transplant at some point in the near future either to conceal the "cutis verticis gyrata" or to conceal the scar I will get from repairing the "cutis verticis gyrata". What are my options? A) Can I have the scalp reduction and a hair transplant at the same time or would that be too traumatic? B) Should I have the scalp reduction to treat the "cutis verticis gyrata" and then after a few months(?) have the hair transplant? C) Or should I have the hair transplant first and then have the reduction to treat the "cutis verticis gyrata"? D) Or can a transplant, without more, treat the "cutis verticis gyrata" and fend off the hair-loss in one fell swoop? I am sure that I have phenomenal scalp laxity thanks, ironically, to the "cutis verticis gyrata", and I have dense thick hair on the back and sides of my head. I realize it might be hard to say anything without seeing my head but any information you could give would help me make a decision and plot out my plan of action. Thanks! |
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I had four scalp reductions in the early nineties. I regret having done it. I was over-promised, downside was not addressed, etc. It was before good information was available on the internet. It left a very unnatural balding pattern that draws attention to my hair (in a negative way). I am scheduled for repair in August. Your scalp condition may cause some aesthetic difficuties, but please proceed with caution. It is possible to make a bad situation worse. Get multiple consults from recommended HT physicians before proceeding.
tom |
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Zuleron
Does not sound like a nice condition you have there. I would take your issue directly to the docs, it is very deep to try and address in the forum, although the outcome would be nice to know. Call them directly for consults, if you understand that a scalp reduction will help I would go directly to the source of this information for more details, if it is a sales pitch run, if it from a doc with documented medical proof?? Good Luck |
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Dear Zuleon,
I feel you. I am 26, AA, male, who has CVG. I have gone to 2 dermatologists and a plastic surgeon with no luck. I emailed the dr. who posted cvg pictures on dermatologico atlas brazil and he even said there is no effective Rx. This condition is extremely unattractive in my opinion, and psychologically damaging to your self-esteem. I just want to rip out each of the 10 lines on my head. How many do you have? I would like to start a list serve or chat room for CVG sufferers. What have you done in the meantime? Mine started when I was like 18 and just progressed as my hair thinned. I even feel funny going to the barber. I too want to shave my head bald and just forget about the thinning, but the lines make that inpractical. We need someone to help us. Have you had hair restoration? CVG sufferer |
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Hi, I just found out this web site researching cutis. I am 28 and found out that I also have this condition about 3 yrs ago. Its interesting to know there is more peopl out there. I wanted to ask you if surgery is done what are the chances of it returning again?
And if nothing is done about it would it continue to grow and come over my forhead? |
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zuleron, Cutis, and sotalol,
Welcome to our community! zuleron, I'm sorry to hear of your condition. This condition is brand new to me to be honest. I agree with Telephone Man. This is a complex issue and without knowing more about the condition it will be difficult for any hair transplant patients or hair loss sufferers to advise you. This is certainly a question for the doctors! But consulting with a first-rate hair transplant surgeon will help ensure you get the best quality information/work possible. Each of these coalition physicians must meet and maintain our high level of standards. That being said, scalp reduction is seldom performed anymore, at least not by any top hair restoration physicians. Consult and consider your options wisely! Good luck! Bill
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Managing Publisher of the Hair Transplant Network, the Hair Loss Learning Center, the Hair Loss Q&A Blog and the Hair Loss Forum and Social Community Follow us on Facebook | Twitter | YouTube Subscribe to our Newsletters | How We Recommend Physicians ----- To learn about how I restored my hair, view my my hair loss website. Remember, true beauty radiates from within, not from the skin. I am not a medical professional and my words should not be taken as medical advice. All opinions and views shared are my own. |
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Bill,
You may reach sotalol, but the other two posters were from 2005. Have you been sniffing too much minoxidil or something?? Seriously, it sounds like an awful condition if some would even consider scalp reduction sotalol, I hope you get the info you need and your condition improves my friend. Scalp reduction is barbaric and leaves terrible scars, proceed with caution. Modern docs will steer you correctly, but get several consultations first. |
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nobuzz...
Thanks why YOU have been deemed the old thread revival policeman! Thanks for setting my path straight Bill
__________________
Managing Publisher of the Hair Transplant Network, the Hair Loss Learning Center, the Hair Loss Q&A Blog and the Hair Loss Forum and Social Community Follow us on Facebook | Twitter | YouTube Subscribe to our Newsletters | How We Recommend Physicians ----- To learn about how I restored my hair, view my my hair loss website. Remember, true beauty radiates from within, not from the skin. I am not a medical professional and my words should not be taken as medical advice. All opinions and views shared are my own. |
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